March 27, 2020

Update by Kim

This photo looks like today. Just rolling with it. Not much has happened since yesterday. Shannon is still interacting wonderfully. We were able to FaceTime her several times yesterday- including having her visit with a few of her siblings. She seemed to be happier when she saw them. Last night when we chatted with her before heading to bed, she was a lot more smiles, and even a few chuckles, which does great things to our parental hearts.

Today she's still practicing breathing without the ventilator for 15 mins several times throughout the day. The PT team came in and moved her to a "wheelchair" for a while- which just looks like a smaller version of her bed. It had her sitting up a bit more than her bed does. She didn't like it much so after an hour of it, they moved her back to her bed. She seemed uncomfortable and out of sorts more when we talked to her this morning, and we could tell she was struggling in the chair.

She continues to make great progress. We are waiting on a few things that she needs to overcome before she can be transferred to a spinal rehabilitation hospital. She still has some bacterial infections they are treating, and she needs to breath better on her own. This is all very surreal, and we find ourselves, yet again, in unknown territory.

Please pray that Shannon can overcome the infections her body is fighting, that she will continue to regain the use of her lungs on her own, and that her spinal cord will continue to heal. Also that she will stay strong and keep fighting, and have the comfort and peace she needs to cope with the condition she finds herself in.  We wouldn't mind prayers for us to make the right decision on her rehabilitation hospital either- if I can be selfish and ask for that. Thank you all for your kindness and prayers.

"Even MIRACLES take a little time" Fairly Godmother- Cinderella